As delightful as warm socks or a gift card can be, sometimes you want to give a present that carries a little extra meaning. If a friend or family member lives with a rare or chronic disease, this list could help you find what you’re looking for.
Surviving and Thriving with an Invisible Chronic Illness
For people living with a chronic or rare illness, learning how to navigate daily challenges isn’t always straightforward. That’s why Ilana Jacqueline, who lives with a primary immunodeficiency, wrote “Surviving and Thriving With an Invisible Chronic Illness.” New York Magazine called it “an important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.”
Readers will find advice, tips and tricks on relationships, school, work, unavoidable absences and managing medical care. For another patient’s take on invisible conditions, consider Meghan O’Rourke’s “The Invisible Kingdom,” which was a contender for the National Book Award.
Awareness-themed Clothing and Accessories
The National Organization for Rare Disorders is all about awareness and its online store is full of conversation-starting sweatshirts, tote bags, hats and mugs. The gift items feature a “Rare Rockin’” zebra, which is the icon of the rare disease community, and a reminder that “Alone we are rare. Together we are strong.”